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Understanding the Support Needs and Challenges Faced by Family Caregivers in the Care of Their Older Adults at Home [Letter]
Authors Xiao Z, Jiang Y , Samah NA
Received 8 September 2024
Accepted for publication 25 September 2024
Published 28 September 2024 Volume 2024:19 Pages 1607—1608
DOI https://doi.org/10.2147/CIA.S495160
Checked for plagiarism Yes
Editor who approved publication: Dr Nandu Goswami
Zhanshuo Xiao,1 Yilin Jiang,2 Narina A Samah2
1Department of Dermatology, Guanganmen Hospital, China Academy of Chinese Medical Sciences, Beijing, 100053, People’s Republic of China; 2School of Education, Universiti Teknologi Malaysia, Skudai, Johor, 81310, Malaysia
Correspondence: Yilin Jiang; Zhanshuo Xiao, Email [email protected]; [email protected]
View the original paper by Mr Hailu and colleagues
A Response to Letter has been published for this article.
Dear editor
We revisited the article entitled “Understanding the Support Needs and Challenges Faced by Family Caregivers in the Care of Their Older Adults at Home”.1 The study offers valuable insights into the complex challenges faced by family caregivers in Mekelle, Ethiopia, particularly amid the ongoing conflict in the Tigray region. It identifies key challenges such as financial strain, inadequate communication with healthcare providers, medication management difficulties, and transportation barriers—issues that are further intensified by the conflict. The use of a phenomenological approach to explore these lived experiences is effective, providing a comprehensive understanding of the intricate realities faced by family caregivers. The thematic analysis captures the psychological, emotional, and practical difficulties encountered by caregivers, highlighting the nuanced nature of caregiving in low-resource and conflict-affected settings and underscoring the urgent need for comprehensive support mechanisms tailored to their unique needs.
However, several areas within this study could be strengthened to enhance its depth and relevance. First, while the methodology presents data on demographic variables such as age, gender, and socioeconomic status, these details are not connected to specific participants in the results. This disconnect prevents readers from associating specific narratives with individual participants, thereby limiting the understanding of how demographic factors may influence caregiving experiences. Integrating demographic information with participant coding would provide a richer context and enable readers to better interpret the findings, illustrating how different factors intersect to shape caregiving dynamics.2 Second, while the study employs thematic analysis, the presentation could be enhanced through visual aids such as charts and graphs. Displaying the coding process and thematic breakdowns in visual formats would provide clearer guidance on how the researchers managed and interpreted the data, which is rich with participants’ lived experiences.3 Such visual representations could improve transparency and credibility, helping readers to better understand the analytical process and draw informed conclusions. Third, while the study addresses general caregiving challenges, it does not provide a detailed gender-based analysis. Understanding whether female and male caregivers experience different types of stress or have unique support needs could lead to more targeted support interventions. For example, male caregivers might face different societal expectations or emotional barriers compared to female caregivers, affecting their caregiving roles.4 Additionally, the study does not deeply explore how intersecting factors such as age, socioeconomic status, education level, and the nature of the relationship with the care recipient shape these experiences. Future research would benefit from an intersectional approach to examine how these factors interact and affect caregiving in varied contexts. Finally, the study’s recommendations could further explore digital health solutions to address challenges related to healthcare access and transportation. Future studies should investigate the feasibility and implementation of mobile health (mHealth) applications and telemedicine to provide caregivers with remote access to medical advice, psychological support, and training resources.5
Overall, this study illuminates challenges faced by Ethiopian family caregivers, providing insights for improved support systems. Enhanced findings can inform caregivers, policymakers, and stakeholders in low-resource and conflict-affected environments.
Funding
The study was supported by a grant from the High-Level Chinese Medical Hospital Promotion Project (No. HLCMHPP2023027) and The Escort Project of Guang’anmen Hospital, China Academy of Chinese Medicine Science-Backbone Talent Cultivation Project (No. GAMHH9324021). The funder had no role in the study design, data collection, analysis and interpretation, writing of the report, or decision to submit the paper for publication.
Disclosure
Co-first authors: Zhanshuo Xiao and Yilin Jiang. The authors report no conflicts of interest in this communication.
References
1. Hailu G, Abdelkader M, Meles H, Teklu T. Understanding the support needs and challenges faced by family caregivers in the care of their older adults at home. A qualitative study. Clin Interv Aging. 2024;19:481–490. doi:10.2147/cia.s451833
2. Wang S, Cheung DSK, Leung AYM, Davidson PM. Factors associated with caregiving appraisal of informal caregivers: a systematic review. J Clin Nurs. 2020;29(17–18):3201–3221. doi:10.1111/jocn.15394
3. Braun V, Clarke V. Using thematic analysis in psychology. Qual Res Psychol. 2006;3(2):77–101. doi:10.1191/1478088706qp063oa
4. Giesbrecht M, Williams A, Duggleby W, Ploeg J, Markle-Reid M. Exploring the daily geographies of diverse men caregiving for family members with multiple chronic conditions. Gender Place Cult. 2016;23(11):1586–1598. doi:10.1080/0966369x.2016.1219329
5. Källander K, Tibenderana JK, Akpogheneta OJ, et al. Mobile health (MHealth) approaches and lessons for increased performance and retention of community health workers in low- and middle-income countries: a review. J Med Internet Res. 2013;15(1):e17. doi:10.2196/jmir.2130
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